BLOCKING THE PAIN CAN HAVE NEGATIVE CONSEQUENCES

  When you are chronic pain sufferer or a Lymie (Lyme disease victim) you are accustomed to pain. You can’t complain anymore about it because it is part of your normality. By now you learnt how to live with it and how to ignore it. You don’t run to the doctor anymore when your joints get swollen and ache or when you have muscle pain and twitches, horrible migraines, heart palpitations and so on. The doctor can’t help you anyway! He can’t make them go away! He’s not a wizard! Since you are dealing daily with a cocktail of symptoms […]

BORRELIA’S IMMUNE EVASION STRATEGY

Ixodes scapularis ticks are known to carry and transmit Borrelia Burgdorferi, resulting a multi-system illness affecting humans and animals as well. How does a bacteria trick an innate immune system? It uses a mechanism to fight the hosts’ immune response. Researchers from the University of Maryland (UMD) have discovered how Borrelia Burgdorferi can survive for months within the human body. Dr. Utpal Pal and his team have done research on Lyme and Borrelia for over a decade at UMD. One of his latest studies revealed that Borrelia has an incredible ability  of creating a protein that dissolves the host’s body […]

LYME POET – THE STORY BEHIND THE NAME

Recently I have been asked on few different occasions why I chose The Lyme Poet as a pseudonym for my writing. What was the reason behind it or what was the connection between Lyme and my poetry. To answer the question, I will say that Lyme and poetry are two of the things that describe me the most. I write poetry and I am a Lyme disease advocate. I even write poetry about Lyme disease. As a chronic Lyme disease sufferer I have seen my health deteriorating to a point where I thought there was no turning back. Lyme stole […]

TOP 10 WORST SYMPTOMS OF LYME DISEASE

  If someone would ask me what are the most annoying Lyme-related symptoms that I ever experienced, I would have a list ready within less than a minute. As a late stage Lyme disease victim I experienced a lot of symptoms, mostly because my illness was not discovered on time. Thus I ended up developing neurological symptoms, muscles and joints problems, heart and circulation and digestion. Let’s start the final countdown and see what are the insidious symptoms. Keep in mind that the list below starts with the less annoying symptom and ends with the winner, the most disturbing symptom […]

THE PAIN OF NOT LOOKING SICK

  When you suffer from an invisible illness things are more challenging because you need to deal also with the pain of not looking sick. It feels awful being in pain, living in pain and not being believed. When you have to constantly explain yourself and convince others that your sickness is real and you are not  hypochondriac, it is a horrible feeling.   Take a look at my photo above. At a superficial glance, there’s nothing wrong with me. I look just fine! That’s where everyone is wrong! Little you or others know about the war going on under […]

WHAT IS THE LYME DIET?

Most of the Lyme literate physicians recommend to Lyme suffers to change their eating habits and switch to a Paleo diet. What is a Paleo diet? You may have heard about it, or its benefits, but you still can’t grasp what it really means?   Basically, the Paleolithic diet is deficient of gluten, dairy and sugar, which are the main culprits for causing inflammation in the body, feeding the spirochetes or suppressing your immune system. Yeast is also something that you should avoid as well. The Lyme diet is a mix of the Paleo and Candida diets, as the second […]

RISK OF LYME DISEASE INCREASES WITHIN CANADA

The federal government allocated last year only $4 million for a research program meant to develop improved Lyme diagnosis, testing and treatment. Despite the fact that the Canadian health authorities have noted an increased number of cases of Lyme, the changes are not noticeable at all. Nowadays Lyme disease seems to get more recognition than the previous years. (Not thanks to the government though!) It’s all due to the Lyme sufferers who turn to the media. The pace is still incredibly slow. Yes, people hear more often about it, may learn a thing or two, but those who are directly concerned need […]

FINDING THE SILVER LININGS OF LYME DISEASE

When you are fighting Chronic Lyme Disease, there is no doubt that your life has seen a dramatic change due to your illness, that your priorities changed. Facing the harsh reality of being diagnosed with a chronically illness unleashes feelings of denial, fear and grief. You feel robbed of your best years. Your sense of identity and purpose, your perceptions and perspectives about the world shift. You see life through a different lens.   It is an unrealistic expectation to keep an optimistic outlook while you are dealing with chronic pain, burning under the skin, flares, fighting anxiety or depression. If that was […]

WHEN LYME MEETS MS – INSIGHTS OF A CHRONICALLY ILL COUPLE

  In the Internet era, we often read or hear sad stories about how chronic illness destroys relationships. It is a painful topic that no one really wants to discuss about, because they will have face the ugly truth straight into the eyes. It takes guts to be candid about the difficulties of caring for a chronically ill spouse.   It also takes a lot of finesse, patience, empathy, compassion and commitment to deal with a chronically ill spouse or significant other. Sometimes one needs magician skills to run through the hoops of a moody, depressed partner. The staggering divorce […]

HOW DOES IT FEEL TO LIVE WITH AN INVISIBLE ILLNESS LIKE LYME DISEASE?

After more than a decade of being sick, I still get asked within my circle of friends or by extended family members how come I am not cured yet. Or why don’t I look sick like other Lyme patients they have seen in the news? Some insist on recommending me a either specialist or a home made remedy meant to bring me some relief, while others dive in pure oblivion and tell me Lyme is not real.   A few years back, I used to  get annoyed by these comments. I was disturbed by the fact they were not able […]